Staying hydrated on a 95° day in Rome
We’re a family that loves to explore. Whether we’re wandering the colorful streets of Croatia, zip lining in the Alps or tracking down the best gelato in Italy, travel has become one of our favorite ways to learn, connect, and make memories together.
Of course, traveling with cystic fibrosis in the mix means we pack a little differently than most. Along with clothes and toiletries, we have an extra suitcase full of daily and emergency meds, Matthew’s 17 pound therapy vest machine, two nebulizers (in case one breaks!) and plenty of feeding tube supplies. And let’s be honest: sometimes things go sideways. We’ve had to replace a nebulizer in Austria, fill a critical prescription in Germany (after realizing I had left it at home), and figure out how to keep meds cold in a hotel room that didn’t have a fridge. But somehow, even the logistical hiccups become part of the adventure.
We believe that adaptable travel should be possible—and joyful—even when it takes a little extra effort. For us, it’s about saying yes to experiences, even if they come with a carry on full of medical supplies. It’s about showing our boys the world and showing the world what’s possible with cystic fibrosis.
Click on any photo below to visit that country’s gallery and see where the road has taken us so far. Thanks for coming along for the ride!